Sinopse

Welcome to Help4HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help4HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Katie Jackson each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through a generous communications grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc. **Please consult with you own physician for advice about any medical recommendation.

Episódios

  • Kirsten and COVID19

    Kirsten and COVID19

    08/07/2020 Duração: 15min

    Kirsten and COVID19

  • Update from UniQure

    Update from UniQure

    01/07/2020 Duração: 26min

    Matt Kapusta from UniQure joins us to provide an update.

  • Kay and Taylor

    Kay and Taylor

    24/06/2020 Duração: 19min

    Join us as we talk with Kay and her best friend Taylor who has HD

  • Kary Portillo

    Kary Portillo

    18/06/2020 Duração: 24min

    Huntington PARAGUAY

  • Anne-Elizabeth

    Anne-Elizabeth

    10/06/2020 Duração: 19min

    Anne-Elizabeth

  • Ashley Fajardo

    Ashley Fajardo

    04/06/2020 Duração: 26min

    Ashley Fajardo

  • Its not always HD

    It's not always HD

    27/05/2020 Duração: 33min

    It's not always HD

  • The importance of insurance

    The importance of insurance

    20/05/2020 Duração: 14min

    Katie Simos is a Regional Sales Manager with AFLAC and longtime friend of Lauren Holder.  *Please note: This information is for educational purposes only, not to sell you anything. However, if you would like to get more information about how AFLAC policies could benefit your family with HD, please reach out to Lauren Holder at lauren@help4hd.org 

  • My Wifes Caregiver

    My Wife's Caregiver

    13/05/2020 Duração: 49min

    Paul talks to us about being his wife's caregiver

  • Vaccinex

    Vaccinex

    06/05/2020 Duração: 32min

    Maurice Zauderer, Ph.D. has served as Vaccinex’s President and Chief Executive Officer and a member of the board of directors since the company’s inception in April 2001. Prior to founding Vaccinex, Dr. Zauderer was an Associate Professor at the University of Rochester and has also held senior faculty positions at Columbia University. During his academic career, Dr. Zauderer held the position of visiting scientist at the Laboratory of Cell Biology, the Ontario Cancer Institute and the National Cancer Institute. Dr. Zauderer received a B.S. in Physics from Yeshiva University and a Ph.D. in Cell Biology from the Massachusetts Institute of Technology.

  • Dysphagia

    Dysphagia

    29/04/2020 Duração: 27min

    For more information, please visit https://www.asha.org/

  • Becky Crumpler

    Becky Crumpler

    22/04/2020 Duração: 19min

    Becky Crumpler talks about her daughter being in a facility during COVID-19

  • ER Visits during COVID-19

    ER Visits during COVID-19

    15/04/2020 Duração: 23min

    ER Visits during COVID-19

  • COVID-19 and HD

    COVID-19 and HD

    08/04/2020 Duração: 44min

    Because we are all concerned about COVID-19 right now, we are re-airing our show with Dr. Wheelock and Lisa Mooney. Dr. Vicki Wheelock is a neurologist and the director of the HDSA Center of Excellence at UC Davis Health. The mission of the HD clinic at UC Davis is to provide expert and compassionate care to people and families affected by HD, to provide outreach and education to families and health care professionals, and to advance HD research. Dr. Wheelock has extensive experience in HD education and research, and has been an investigator for HD observational studies and clinical trials since 1997. Lisa Mooney is the licensed clinical social worker for the HDSA Center of Excellence, UC Davis, and Northern California HDSA Chapter. HD patients, family members, and community providers can call Lisa regarding HD resources, community resources and benefits, information and education, and long term care planning. 

  • Lauren Holder and COVID19

    Lauren Holder and COVID19

    01/04/2020 Duração: 27min

    Lauren Holder and COVID19

  • WAVE Life Sciences

    WAVE Life Sciences

    25/03/2020 Duração: 21min

    Among Dr. Kenechi Ejebe’s responsibilities at Wave is to serve as the clinical lead of the Neurology (CNS) programs which include Huntington’s disease, amyotrophic lateral sclerosis, and frontotemporal dementia. Dr. Ejebe has more than 10 years of translational and clinical research experience focused on developing innovative treatments for patients. Prior to joining Wave, he was a Resident Physician in Psychiatry at the Mount Sinai Hospital. Prior to that he was a member of the founding scientific team at Moderna Therapeutics. Dr. Ejebe received his undergraduate degree from Carleton College and medical degree from The George Washington School of Medicine. He completed training in adult psychiatry at Mount Sinai Hospital, with advanced research training in neuroscience at the Icahn School of Medicine.

  • Dr. Wheelock and Lisa Mooney Talk Risk factor and More with COVID-19 and HD

    Dr. Wheelock and Lisa Mooney Talk Risk factor and More with COVID-19 and HD

    19/03/2020 Duração: 44min

    Dr. Vicki Wheelock is a neurologist and the director of the HDSA Center of Excellence at UC Davis Health. The mission of the HD clinic at UC Davis is to provide expert and compassionate care to people and families affected by HD, to provide outreach and education to families and health care professionals, and to advance HD research. Dr. Wheelock has extensive experience in HD education and research, and has been an investigator for HD observational studies and clinical trials since 1997. Lisa Mooney is the licensed clinical social worker for the HDSA Center of Excellence, UC Davis, and Northern California HDSA Chapter. HD patients, family members, and community providers can call Lisa regarding HD resources, community resources and benefits, information and education, and long term care planning. 

  • Terry Tempkin,NP-C, MSN Talks About HD During These Hard Times with COVID-19

    Terry Tempkin,NP-C, MSN Talks About HD During These Hard Times with COVID-19

    18/03/2020 Duração: 45min

    Terry Tempkin, NP-C, MSN, is an Adult Nurse Practitioner who spent 18 years working with Huntington’s disease families at the University of California Davis Health System. During her time there, she worked with the HD team to build one of the largest HD programs in the country, noted for their expertise in HD/JHD care. She participated in over 18 clinical trials in Huntington’s disease.   Although she retired from the Health System in 2016, she did not retire from the passion to care for families coping with HD.

  • European Huntington Association

    European Huntington Association

    12/03/2020 Duração: 21min

    Please visit http://eurohuntington.org/ for more information.

  • KINECT-HD

    KINECT-HD

    04/03/2020 Duração: 29min

    For more information about KINECT-HD, please visit the HSG website at: https://huntingtonstudygroup.org/current-clinical-trials/kinect-hd/

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