Informações:
Sinopse
Welcome to Help4HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help4HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Katie Jackson each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through a generous communications grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc. **Please consult with you own physician for advice about any medical recommendation.
Episódios
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HD Uncut with Meredith Patterson
18/04/2024 Duração: 01h10minMeredith Patterson is a performing artist, author, and producer whose family was impacted by Huntington's Disease. To learn more about her, please visit her website: https://meredithpatterson.com/ She also has a podcast called "Confessions of an Actress". This week on her podcast, she shared about Huntington's Disease as a way to raise awareness. You can check out the episode here: https://podcasts.apple.com/us/podcast/confessions-of-an-actress/id1456371818?i=1000652286159
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Using Optical Tweezers in HD with Dr. Piere Rodriguez-Aliaga
11/04/2024 Duração: 31minPiere Rodriguez-Aliaga, PhD, is a young investigator whose current HD research is funded by the Hereditary Disease Foundation. He is using a new Nobel Prize-winning technology called Optical Tweezers to study one huntingtin molecule at a time, which allows access to structural information about pathogenic and non-pathogenic huntingtin variants with unprecedented detail. Please visit the Hereditary Disease Foundation website for more information.
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Cognitive Symptoms & Patient-Reported Outcomes with Dr. Jennifer Petrillo Billet
04/04/2024 Duração: 47minJennifer Petrillo Billet PhD is an Executive Director and Program Lead for investigational dalzanemdor, or SAGE-718, at Sage Therapeutics. She is responsible for driving the global development strategy, including delivery of the right evidence for key stakeholders including regulators, payers, and providers, and patients. Dalzanemdor is being evaluated for indications in Huntington’s Disease, Alzheimer’s Disease, and Cognitive Impairment in Parkinson’s Disease. Jennifer has 20 years of deep expertise in the measurement science of Clinical Outcomes Assessments (COAs) and significant experience in all phases of drug development. Jennifer received her Bachelors in Economics at Virginia Tech, and her PhD from the London School of Hygiene and Tropical Medicine (LSHTM). She has published and presented extensively on health economics and outcomes research topics, and clinical research, across a range of leading journals and conferences.
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HDYO Ambassador Series: Rhiannon
28/03/2024 Duração: 35minPlease visit www.hdyo.org for more information
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HD Gratitude Day
21/03/2024 Duração: 08minPlease visit the Factor-H website for more information. Please also tune in to the Factor-H YouTube Channel on Saturday 3/23/2024 at 12 pm EST for HD Gratitude Day events in Venezuela.
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Samantha Decker
14/03/2024 Duração: 27minSamantha and I got to participate in a focus group together. Here our thoughts about research and more!!
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HDYO Ambassadors Series: Ep 1. with Robyn
29/02/2024 Duração: 27minHDYO Ambassadors Series: Ep 1. with Robyn
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HD Uncut, Ep. 12, with John Howard
22/02/2024 Duração: 26minHappy 1st anniversary of the #HDUncut Series on #Help4HDLive! This show is exactly why I came up with the series in the first place. John Howard has Huntington's Disease. He's also a very talented poet. On this show, he shares some new poetry with the HD Community.
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Layers of Love with Dave, Susie and Erika
15/02/2024 Duração: 43minHappy Valentine's Day! Join Erika Boulavsky from HD Reach and Lauren Holder from Help 4 HD in their conversations with Dave and Susie Hodgson about their Layers of Love. Dave and Susie's unique story talks about caring for both of their spouses with HD, how they found each other, and how they continue to support one another while caring for their kids with HD. To watch more webinars from the "Rare Topics for a Rare Disease" Series, please visit HD Reach's website here.
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"We Exist" with Tanita Allen
08/02/2024 Duração: 27minTo follow Tanita Allen, please visit her website: https://tanitaallen.com/ Here is the link to purchase a copy of Tanita Allen's book: We Exist
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DNA Repair in HD with Dr. Joseph Hamilton
01/02/2024 Duração: 28minPlease visit the Hereditary Disease Foundation website to find out more information.
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@thehdhun with Charlotte
25/01/2024 Duração: 24minIf you'd like to follow Charlotte on social media, please visit her website: https://linktr.ee/thehdhun Instagram handle - @thehdhun TikTok - Click Here
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HD Charge with Dr. Jamie Hamilton
11/01/2024 Duração: 38minJamie L. Hamilton, PhD, is the Director of Clinical Outcome Assessments at CHDI. She led the HD Charge study, which focused on the indirect costs associated with being affected by Huntington's Disease.
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Livable Lives with Christy Dearien
21/12/2023 Duração: 21minIf you'd like to follow Christy on social media, you can find her here: Facebook - www.facebook.com/ChristyDearien Instagram - @christydearien
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Welcome to Help 4 HD, Anna Lunsford!
14/12/2023 Duração: 19minIf you would like to send your resources and tips and tricks to Anna for our new database, please go to the Help 4 HD website - www.help4hd.org - go to Contact Us and submit. Anna is regularly checking submissions through the website. You can also send it directly to her email at anna@help4hd.org
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Help 4 HD 2023 with Katie and Katrina
07/12/2023 Duração: 26minFor more information about all that Help 4 HD is doing, please visit the website - www.help4hd.org
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Coping During the Holidays with Melissa W.
30/11/2023 Duração: 55minCoping During the Holidays with Melissa W.